House bound from chronic illness

  1. Immersive TV series/books/games, cooking, crafts, if you’re alone try and text friends or have them over, whatever other activities you enjoy. Keeping a routine that balances your individual needs for rest, social interaction, fun and responsibilities is probably most helpful. It’s hard to deal with but if you’re already doing whatever you need to do to care for your disease then distraction and trying to have a life apart from/in spite if it is the best you can do. It sounds like you believe you will get better though?

  2. I’ve been home bound for over two years pretty much aside from doctors appointments. Do not loose connections with the good people in your life. If this is a long term thing for you, it will quickly become apparent that people who may have seemingly said they cared for you for years actually don’t. However sometimes friendships may grow stronger! It gives you an interesting way of weeding out people who are meant to be in your life and what not. Also find a time consuming hobby that you actually enjoy. For me it’s miniatures. I spent 7 months doing my last house and I worked on it in chunks when I had the energy. It took my mind off the pain and loneliness. My partner works during the day so I’m home by myself except for our animals. It gave me something to look forward too everyday and that is something that’s really important.

  3. It may sound old-fashioned but I found knitting/crocheting to be really soothing (as long as it doesn't cause you any joint discomfort or pain, of course!). I especially love using the bigger needles and thicker yarn so it's easier on my hands but it is quite immersive. And I get a giant comfy blanket at the end of it :D

  4. Not sure if this helps, but I write novels. It’s a creative outlet that I can do when my brain works. I’ve learned so much. I rewrote both of my first ones because they weren’t very good. Now I’m on book three and four (plenty of trapped time). There are also some amazing and supportive online writing groups.

  5. If you can find friends who might be free at the times of days you're home that can be really helpful (like online overseas friends who might not be at school/work when your regular friends are) so you can have someone to chat to about stuff and keep yourself entertained. Drawing and reading are super fun for me, and although housebound it is nice to occasionally go to a park or another outdoor setting (if possible) even just to sit and look at the scenery.

  6. I'm sorry you are going through this. I have been through something similar with my autoimmune diseases. Thankfully I am doing a lot better now with new meds. I hope you will find relief from your symptoms soon. The things that helped me the most are: practicing mindfulness and meditation, distractions like art projects/coloring books/movies/tv/music/games, finding a therapist for video telehealth visits to work on my mental health and coping skills, preferably look for one who specializes in disability/chronic pain/chronic illness (Psychology Today's website has a great search tool for finding therapists with filters for specialties, location, insurance, etc), trying to do a small amount of low impact gentle exercise each day (yoga, even if it is just a few yoga poses in bed, tai chi, short walks, etc), practicing good sleep hygiene, and paying attention to my diet: doing an elimination diet to see if any foods affect symptoms, trying to eat a variety of healthy things, but still rewarding myself by having sweets or junk food in moderation.

  7. I’ve been pretty much homebound for… I wanna say a little over a year? For the first couple of months I just plowed through documentaries. It kept my mind active and learning and made my room feel a little bigger. My usual fare is crime shows, but over time I noticed it was starting to get me a little down. I started watching less heavy stuff every so often (period dramas, anyone?) and it helped. Just keep an eye on the subject matter of your shows of choice! Schedule REGULAR breaks for yourself from your phone and laptop and such, I learned that even when spending time in lighthearted or support communities the endless scroll was taxing on my mind and body. If you like to read but brain fog is making it tough, there’s nothing saying you can’t go back and read some childhood favorites. I’m stuck reading books for 10yo so I’m about to tackle my old Nancy Drew books for nostalgia purposes.

  8. Hey!! Some things I like to do to keep my mental health stable are : take care of myself (aka, shower daily, exercise if i can). I really like to do at least one self-care heavy day a week, which i usually do a long shower with a hair mask, shave, do my eyebrows, etc. i usually clean my room this day too, make my bed and all that. Being clean and having a clean space does LOADS for my mental health. Also just getting “dressed” every day, even if it’s still pajamas just different ones.

  9. I have been housebound since right before the pandemic it is annoying but I am an introvert so it does not bug me as much as it would an extrovert. I love to read but my double vision makes that far more difficult, but there are free audiobooks I can check out at my local library and send to my fire tablet or tv. Right now there are video games for almost every personality and interest, Minecraft is amazing it scratches an itch I have to collect and organize and it is very relaxing as long as I don't die. I used to love computer games but my computer is like from 2012 so my PS4 is pretty much my only source, I watch way to much tv. I nap often but I never really feel rested the drugs I am on my everything hard to focus so I am out of it most of the time. There has to be non creepy people into the same stuff you are, what happened to all your friends? I chat with my facebook friends to keep my social meter full with is a joke as that is from the SIMs which you might enjoy. Hobbies take a lot of money but there has to be something cheep like drawing or something else to pass the time

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